She’s right. A large majority of people would never understand this, but I’m in the percentage who understands, without further explanation.
People say this to me often, but they’re about as emotionally present as a flea. They don’t call, they don’t check in, they don’t ask if there’s something I CAN do and agree to join me, etc. It’s always about them. It’s like being invisible, just like my illness. I don’t exist, unless someone wants or needs something, and suddenly I’m this amazing, brilliant person. I didn’t think it was possible to roll my eyes so much, but it IS, and it’s because I find it offensive and rude.
Maybe it’s because I am a writer, but I believe words have immense power. Use them wisely, and please, check in on people. Just because they’re not hospitalized doesn’t mean they’re not isolated and/or hurting deeply. I spend 95% of my time completely alone. I’m not even sure why I have a phone most days. It would be nice if people weren’t so self-centered, but since they remain as they are, I’ve decided to remain who I am.