“The best revenge is to be unlike him who performed the injury.” –Marcus Aurelius
“The best revenge is to be unlike him who performed the injury.” –Marcus Aurelius
I’m running out of ways to describe my current state of mind. Earlier this week I had a different sense of self, and then I came home to discover I had lost my house key and the remote for the alarm. Thankfully, they were found and brought to “Lost & Found”. I received a return call the following morning letting me know they were safe and sound, and that I could come and get them, which I did on Thursday. You cannot imagine how stupid I felt in the moment, especially considering my history. I have had a set of house keys since I was eleven years old. I still have keys for every place I’ve ever lived, except my last place of residence where I tossed the keys onto the front lawn on the final day of moving. That was my way of shedding myself of the negativity of a horrible experience that is still haunting and affecting me on a daily basis. It wasn’t an exact science, but in the moment, I didn’t want to physically be carrying around a physical memory filled with pain.
I don’t normally lose something I tend to keep my eye on. That error made me so upset, and it made me question myself for days. It was an enormous “What the fuck is wrong with you?” moment, at least for me. I know many people will say I am human, no one is perfect, and/or shit happens, etc., but I take my responsibilities seriously. Anyone who thinks otherwise doesn’t know me at all.
Despite that incident, I had an extremely productive neurology consult with a new doctor. I waited nearly six months to see her, and I was definitely feeling iffy walking into the situation. After going through all of the standard questions, a quick baseline test, and doing a neuro history to rule out what I have and haven’t tried, she immediately discussed the treatment method with me that she feels I am the best candidate for. I was relieved to hear someone cut through all the bullshit and go straight to precisely what I have wanted to do migraine-wise for the past six years. I have a three to six month wait, but she feels it will be worth it, and I am hopeful. It’s by no means a cure; I will still get migraines, but after my first year of treatment, I shouldn’t be getting daily migraines any more, or migraines that last for weeks at a time. In less than three years, I have had eighty migraine-free days. That isn’t even two straight months without searing pain. To be taken seriously right out of the gate and have someone treat me with such respect was truly a bit of a shock. As I’ve likely said before, my faith and trust in the medical community is basically nonexistent. In the past year, I have met three good doctors and maybe one or two decent medical professionals, but everyone else has been a medical failure, and for me, even one medical failure is one too many.
When I explained the appointment to my brother and told him how it went, he asked me what I am supposed to do for my migraines for the next three to six months. His exact words were “What are you supposed to do in the meantime? Chew Excedrin?” It was a valid question, and it reminded me that I had not asked for an abortive, so I will call ASAP and see if my doctor is willing to get Relpax approved until the new treatment begins. Thus far, my insurance company has been very on the ball with nearly all of the things I’ve needed, so I hope this won’t become a battle. I honestly can’t handle another moment where I have to battle anyone or anything. I am mostly a basket case (which is truly nothing to joke about) on Promethazine. As it turns out, stress really DOES affect us far more than we realize.
I have seen myself decline in a dramatic way over the past year. I have never felt more “off” or out of touch with myself than I am now. Being chronically ill isn’t fun, nor is it glamorous. It is a daily battle just to get out of bed. This is something people don’t seem to realize, unless it’s happening to them.
I am having a difficult time wrapping my mind around the fact that it is June. I rarely say “I want to go back to this month and start over.”, but I have definitely been feeling like this quite a bit lately. The heat waves and then 30-40 degree drops in temperature have taken their toll on me. But from here on out, I expect this to be a disturbingly hot summer and I am stressed with the thought of trying to navigate through it. I don’t want to deal with being sick, dehydrated, and isolated. There’s not much I can really do about any of these things, but the knowledge that it’s all headed my way is genuinely too much for me.
I am trying to keep up with everything here and still live my daily life. The truth is, my daily life is exceedingly dull and unhappy. I lack the ability to be fake and pretend it’s something it isn’t. So while I am clearly not writing as much as I would like, I am still doing the best I can. I thank everyone who has stuck with me all these years, for better or worse. Having an outlet for my thoughts is important to me.
Hopefully I will be able to write more this summer. I can’t make any promises, but I can try my best. Here’s hoping I achieve more than heatstroke over the next few months.
copyright © 2018 Lisa Marino & Blackbird Serenity, LLC. ALL RIGHTS RESERVED.
Earlier in the day I was thinking about someone I know, and how long he had to keep his sexuality a secret, out of fear that his friends, family, and career would all fade away. It disturbed me. It still does. I’m happy that he was able to tell everyone in his life, met someone, got married, and his friendships and career remain in tact.
I don’t sit around much thinking about hiding anything about WHO I am as a person. I believe we all deserve a huge measure of privacy for things that simply aren’t someone else’s business, but I’m also judged as a heterosexual woman who isn’t married.
Between the cat jokes, which I don’t find humorous, to men, on occasion, slamming a door in my face in public. I don’t believe I am a minority, but as I look around, I know that I am, in pretty much all aspects of my life. There is always an assumption made about me. Each one is wrong.
There’s nothing wrong with knowing your worth and adding interest. There’s nothing wrong with being a strong person who, on occasion, needs to meltdown and rebuild herself out of the ashes.
I am still trying to accept me, and I imagine many people struggle with this privately. I find myself needing more quiet than normal, because I’m going through some awful things and it all wounds me deeply. But I’m trying.
I’m real. I have standards, and there’s NOTHING wrong with any of that.
Every once in a while, I believe we all slip into a “funk” or a mood we simply can’t shake. It then translates into lack of interest in things we’d normally be incredibly involved in. I know where my mood stems from, and why, but nevertheless, it is causing more harm than good. What else is new, right?
I was feeling pretty awful earlier this week after spending several days pretty much bed-ridden in pain. I made mention of this and several friends and family members told me I was “one of the strongest people they know”. As per usual, someone tried to take that away from me by insinuating I am “not that strong” or maybe “not strong at all”. Before speaking, I suggest you live in my shoes for six months, experience my pain and suffering, and THEN you might be allowed to imply this or that, but ultimately, take into consideration the very real possibility that you don’t know me as well as others do. Or maybe you choose to see what they do not. Regardless, kicking a person while they’re down is pretty damn low, not to mention, greatly unappreciated. And yet, I wasn’t entirely shocked, just ticked off.
When someone sees you suffering and takes shots at you for no reason; it’s not about you.
There are days I push so hard to survive from one minute to the next, and there are days that take me out completely. It doesn’t mean I don’t want to do something, it means I’m listening to my body. When your body says “I can’t do this today. I need care.”, you have to listen. Just because you pushed your body the day before does not mean it will be kind to you today. Between being physically burnt out, enduring high levels of pain, and disrupted sleep patterns, I feel confident when I listen to my body. There are days I force myself to be “normal” and get things done, and there are days when my body just plain shuts down. It doesn’t mean one thing was more important than the other, but it does mean I have limitations.
In a few days, it will be my third month on muscle relaxers. They helped considerably when I badly hurt my lower back and it was one spasm after another, requiring me to take muscle relaxers, an anti-inflammatory, and spend hours with a heating pad directly where the issues were. Beyond that, they’re doing NOTHING for my neck, unless I’ve been writing all day and my neck feels tight from how I look at the screen for hours on end. I rarely look at the keyboard, which is an interesting little fact I only recently noticed about myself.
I’m writing, trying to complete the final draft of my manuscript. It was going very well, until I decided I needed to re-work the entire first portion of the book. Yes, I’m a perfectionist and a pain in the ass, but I’d rather write something amazing as opposed to something half-assed that seems familiar. Overall, anything one can think of under the sun has already been thought of already (A fancy way of saying “It’s all been done before.”), but can one put a new spin on it? Yes. And so, I have spent hours trying to figure out how to give it an alternative beginning. This involved a prologue I’m really proud of, and as I do my umpteenth read-through, it will involve some major changes throughout the storyline. I’m not pressuring myself about any of this work, but goal-wise, I am going to try writing as much as humanly possible during NaNoWriMo, next month. I’m averaging several thousand words on my good days, so why not take the new word count and see where it leads me? It doesn’t hurt to try. Again, I’m not going to pressure myself, but I AM going to work hard and write to the best of my ability.
If you did/do your best with the written word you put your name on, then you will have achieved much.
I hope everyone enjoys the rest of their week!
copyright © 2017 Lisa Marino & Blackbird Serenity, LLC. ALL RIGHTS RESERVED.
“We are addicted to our thoughts. We cannot change anything if we cannot change our thinking.” ―Santosh Kalwar