I hope everyone had a restful weekend. I’d like to welcome the new subscribers who have come on board in the last few weeks. 🙂 I’m glad you find me interesting enough to follow me on my journey. Please feel free to message me and/or leave comments. I always reply.
Today was hard for me. It was the anniversary of my mother’s funeral. I still have her eulogy typed up, and every so often I go back and read it. Mostly to remind myself where I was in that moment and how far I have come since that day.
I tried hard not to think about it, but by six o’clock in the evening my stomach became ill and my current nine day long migraine intensified. The only thing I could do was turn off my computer, set it aside, take my current migraine medication, which isn’t much, and lie down with a cold pillow over my head. If you know me, you know how much I LOATHE being sick. Suffering from a long list of chronic illnesses doesn’t mean I enjoy it. These are things I never asked for and would not wish upon anyone else. I do my best to navigate each of these things, but I also have to prioritize my health as opposed to forcing it to the back burner. I neglected aspects of myself for a long time and as a result, I am sicker today than I ever was before.
I know constantly having to fight for my rights, advocate for my health and proper treatment, and always feel like there is no certainty, just battles, isn’t helping matters. People often read my posts and get offended when I say “I don’t have much of a support system.” I wasn’t aware I was invalidating people who are, predominantly, quite vacant in my life. If all you do is call me when it suits you, text on occasion, message me here and there, and ask me questions about things of no real importance to me, I don’t consider you a part of my daily “support system”. If you feel invalidated by that statement, the issue lies with you, not with me. There are plenty of people who I have offered support to and have received the equivalent of a slap in the face in response, so excuse me if I don’t deem these people “supportive”. My assessment is quite accurate.
Standing by someone while they sort through their health and unhappy situations means you don’t ever intentionally trigger their anxiety, anger, or emotional suffering. If you never say a kind thing to another person, you certainly aren’t bettering their life in any way.
I was raised by two women, my mother and Grandmother. My Grandmother would always turn to my brother and I and say “If you don’t have anything nice to say, don’t say anything at all.” My mother’s version was different. She always encouraged me to speak my truth. I was five when she told me “The truth is more respected than dishonesty. If someone chooses not to believe the truth, and they try to discredit you, at least you know you’ve told the truth, regardless of what they are choosing to believe.” Those were profound words for a young girl, but she always encouraged me to use my voice, and not allow others to attempt to rob that power from me. Having lost both of them, I know they are each in the unique position of being able to see how people treat me, to hear the conversations and comments, and to know precisely who is and is not doing their best. I am far from perfect, but I am doing the best I can.
My Grandmother was such a strong believer in family. After she passed away, I quickly saw through all the things she tried to keep in tact. Her belief in the “family unit” stemmed from how she was raised, but in truth, there was no “family” at all. There was this immense illusion. My mothers’ side of the family chooses to have nothing to do with me, and the feelings I have in regard to their behavior are things I don’t always verbalize. I try not to think about it too much because I am justified in my anger. I have zero respect for a lack of decency, lack of common sense, and basic humanity. The same is true for my fathers’ family. I witnessed so much growing up, always wondering why my Grandmother held tight to the idea of this “family” dynamic. I watched how it became nothing and continued to become less and less the day of her funeral. Losing both of my parents put everything into perspective for me.
I don’t doubt that certain people have feelings for me, but do I believe those are feelings of love? Rarely. I know my brother loves me in his own way. He steps up at times when I am not expecting it. I know that other family members love me in their own way, too, but I often feel excluded and dismissed. I often feel set aside as a person with no thoughts, no feelings, and no validity. If one more person has the audacity to say “Are you ever positive about anything?”, I will probably lose my temper.
I have never had anyone who truly knows me or anyone who follows my work deem me a “negative person”. I am my most authentic self when I am writing and speaking. I am the same way in every aspect of my life. And yet, I’ve noticed snide remarks of late that question my genuine authenticity. I have walked away before saying “Go fuck yourself.”, because I will not engage with someone who is intentionally looking for a fight and/or being an asshole. I have walked away before saying “You’re clearly projecting if you’re questioning MY authenticity. I question YOURS, but I’m classy enough to keep my mouth shut.”
Love, loyalty, authenticity, and all my friendships and relationships are some of the most important things in my life. In this, I am a supreme perfectionist who is honest about her imperfections. Someone told me last week “I can see that authenticity is very important to you, and I respect that.” When one person chooses not to see it, and everyone else sees it immediately, it is much easier to cope with one person trying to take a pot shot, as opposed to thousands of people viewing you negatively.
I am going through a lot, but I’m still the same person. I am working on myself, and I am doing the best I can. If you don’t know every single thing in my heart, you have zero right to judge me.
This week I move on to other battles. I am hoping for some downtime at some point to be able to find a sense of calm. I have a consult with a new neurologist next week, so I am hoping there’s a positive outcome there, especially since I’ve waited nearly six months to be seen. Fingers crossed for some good news.
Wishing you all a wonderful week ahead… Li
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