“When a person screams in pain, the actual pain is only half the noise they make. The other half is the terror at being forced to accept that they exist.” ―Noah Cicero
For the better part of this year, this is precisely how I have felt. My pain is getting worse (it is damn near uncontrollable) and I’ve been met with nothing but useless doctors who truly do not deserve their titles. Next month I see a new doctor, and I hope and pray that someone will lead me to the root cause and will start treating me like a human-being who is suffering greatly, and losing an enormous chunk of her life in the process. All I want is someone to treat me properly, instead of giving me the runaround.
If you follow me on social media, my life might seem “normal”. It isn’t. I might have that one day where I was able to walk four miles, and then pay for it with a week or two in bed, with nothing but Cat and Kitten to keep me company, as I desperately try to get the heating pad to be my friend and help ease some of the pain, and it will help temporarily until I pass out from sheer exhaustion. More nights than I care to count, I cannot get comfortable or sleep, because my mind is so overactive, it’s painful. I’ve noticed of late that my mind races when I AM asleep, and the pain leaves me unable to move, speak, or silence my brain. Apparently, my brain is running marathons. 😦 There are days I am crawling because of the pain, and then there’s that one good day, or a good chunk of hours, but it usually results in an insanely early bed-time, which results in my waking up in the early morning hours, in tears from how much pain I am in.
I cry a lot lately. The things so many people take for granted, like restful sleep or a ten minute shower, are things I can’t do. I can sleep if I take the PTSD medication and go to bed within an hour or so, because it drops my blood pressure, but the medication will often wear off in the middle of the night. It only has a two hour half-life within the body, so I’m still trying to hit the right dose. I’ve been able to knock my shower time down from an hour to under thirty minutes, and I turn the water off in between each physical task, but it is often exhausting and draining. Instead of taking four or five hours to get ready, I can now be ready in about two hours, but still, I pay for it the following day. I hurt SO bad, that there are days I just can’t do what I need to, and that destroys me.
So much bothers me, and I’m keeping it all inside. When the heart and soul can’t speak, that’s a whole new level of pain one should never know.
I went to the doctor today and disclosed my diagnosis. Instead of reacting as I expected, she is sending me for a test before she decides how to proceed (ie: Where to refer me next.). When I said “My baseline pain every day is about an eight.”, maybe she thought I was being melodramatic, but honestly, my eight is probably a fifteen for most people. We’re all different. I just known how bad an eight can be daily, with zero relief, and I don’t think anyone should take someone’s pain levels lightly.
For now, the only thing she felt comfortable prescribing were muscle relaxers. Since I have been on this particular medicine before, I am sadly excited to go back on them because, in the past, it meant sleeping with a lot less pain. It meant lifting things didn’t hurt the following day as much as a roll of paper towel hurts today. It gave me a tiny portion of my life back, but she completely lost me when she started talking about “spinal injections”. When doctors bring up things that others have said no to, it makes me question whether or not we should practice on them first. 😦
Has anyone had Ketamine Infusions for any reason? I’m curious about the success rate.
Pain peeps: This is important and effects everyone who suffers. It also effects people all over the world. I’d like to do something powerful to make an impact.
Everyone I’ve talked to is deeply concerned about what is going on in this country (U.S.) regarding pain meds and how patients are being treated. I’m a pain patient afraid to seek medical help in a new state, and that’s a problem, too. No one should have to feel this way, but if you heard the horror stories I’m hearing, you’d be hesitant too.
I am going to interview as many people as possible, via phone or e-mail, and write an article for publication. Names can be changed or left anonymous if you’re uncomfortable, but your story is important. If you’re interested, please respond to this post. I will provide you with my personal e-mail address if that’s how you’d like to be interviewed or we can talk and I can listen to your story, whichever you choose. I am covering ALL pain disorders, no one is being left out.
The more real life stories about patients with pain, the better the article will be. I mean business. Please feel free to tell others I’m doing this by sharing this post (It’s probably the only time I’ll ever encourage mass reblogging.). Let’s shed light on the truth of the matter. There’s a big difference between addicts and patients. It’s time to shut down the stigma.
Bright Blessings & Healing Light to all.