Shut Down The Stigma

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Pain peeps: This is important and effects everyone who suffers. It also effects people all over the world. I’d like to do something powerful to make an impact.

Everyone I’ve talked to is deeply concerned about what is going on in this country (U.S.) regarding pain meds and how patients are being treated. I’m a pain patient afraid to seek medical help in a new state, and that’s a problem, too. No one should have to feel this way, but if you heard the horror stories I’m hearing, you’d be hesitant too.

I am going to interview as many people as possible, via phone or e-mail, and write an article for publication. Names can be changed or left anonymous if you’re uncomfortable, but your story is important. If you’re interested, please respond to this post. I will provide you with my personal e-mail address if that’s how you’d like to be interviewed or we can talk and I can listen to your story, whichever you choose. I am covering ALL pain disorders, no one is being left out.

The more real life stories about patients with pain, the better the article will be. I mean business. Please feel free to tell others I’m doing this by sharing this post (It’s probably the only time I’ll ever encourage mass reblogging.). Let’s shed light on the truth of the matter. There’s a big difference between addicts and patients. It’s time to shut down the stigma.

Bright Blessings & Healing Light to all.

#ShutDownTheStigma #PeopleWithPainMatter

The Ledge

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I’m on the verge of letting go today. There’s no way to pretty it up or sugar-coat the amount of pain I am in, both physically and emotionally. I’ve had enough. Reached the boiling point. Feel as though I am trapped in a maze of never-ending bullshit, and I cannot take another second of this.

Over the past two days I’ve accessed my life and come to this conclusion: apart from my responsibilities and loyalties; my life is meaningless. Well, and truly, meaningless. If I were bleeding on the rug, someone would attend to the stain, but they wouldn’t even notice that a body was present. That’s the truth, whether some people are willing to believe it or not, or admit to it. I’ve witnessed too much to feel or believe otherwise.

I have been in a bad place for so many months now and not a single person has so much as noticed. The selfishness in my presence knows no bounds. There’s zero warmth, care, concern, or love present. And quite frankly, I’m sick of it.

I’ve been in tears on and off for almost three days. No one has noticed, said a word to me, asked me if they could help, NOTHING. This is what it feels like to be “the invisible girl”.

While preparing a salad Saturday afternoon, I banged my right hip into the handle for the drawer next to me. It wasn’t anyone’s fault, but it hurt as if I’d just had the bone yanked out of its socket. I actually bit back 95% of what I truly felt physically in that moment, but I was admonished for being “dramatic”. Please, feel this pain for a week and then tell me how “dramatic” I’m being. Clearly, you don’t know true pain.

I am genuinely experiencing the whole “Princess & The Pea” phenomenon, which is not uncommon when you suffer from an autoimmune disorder that revolves around pain. This particular issue is killing me. I can feel every spring in a mattress in such a painful fashion that I want to hurl it out a window. I “wake up” each morning in stiff, agony. Nine out of ten nights, I haven’t truly slept, I’ve simply given up and taken to lying still, in tears, praying for the pain to stop.

I’ve taken over a hundred Aleve in the past month in the hopes that it will provide some small measure of relief, but it never does. I’ve also taken nearly an entire bottle of Ibuprofen because every flare-up makes me feel like an anti-inflammatory MIGHT help “this time”. The pain is maddening, and constant. I hurt so badly each day that I contemplate walking into the middle of traffic, not caring if I get hit or not. My only issue there is that I’d likely survive and remain in worse pain, if that’s even possible. I don’t want to know, I just want this to stop.

I struggle each day to cope with the pain, with my emotions, with stress, but most of all, the pure isolation and loneliness I am forced to carry with me, because I truly am “the invisible girl”.

When I can’t do laundry, take a shower, and do five other things in the same day, I sit here in tears over the loss of life I am experiencing. I have to set alarm clocks and timers to remind me to do things, or they will never get done. I fall at least once a week. No matter how careful I am, the pain brings me to my knees.

Occasionally, I feel okay. But here, in this moment, I’d gladly take death over this agony. Just make sure Cat and Kitten are adopted into loving homes. Cat is aggressive and a bully, so I think she’d do better in a single-cat home at this stage of her life. Kitten is a sweet little angel who loves her Mommy, but doesn’t understand why I have no energy to play and run around with her. Alas, I can’t explain these things to them. All I can do is pray for better days; just not today. Today is Hell and I am burning alive.

copyright © 2017 by Lisa Marino & Blackbird Serenity LLC. ALL RIGHTS RESERVED.

Personal Year In Review

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I wish I had fabulous things to share here as I look back on 2016, the year itself as a complete “body of work”, as opposed to how I genuinely feel about it.

Here’s the unadulterated truth; I’m filled with mixed emotions, anger, pain, and the more I think about it, additional anger on top of the original anger, which is never a good sign. I make no apologies for my honesty. I’m many things in my imperfect human way, but dishonest isn’t on the list.

I take no issue with the company in my life, or lack thereof. I am a firm believer that we all go through hard times and that hard work, love, and prayer will get us through it. I take no issue with surviving (Life should be more than that though, right?) and having a few good days here and there (Though I am determined to not allow people to ruin my days when I’m feeling good and their moods aren’t meant for me. However, this is a process. It will not happen instantaneously.), but I do take issue with things outside my control.

I am a self-admitted control freak when it pertains to a lot of things in my life, and with other things, not so much. Overall, I’m tired of my best not being good enough, and having people remind me of my failures. Never look down upon someone unless you’re helping them up. Asking for help through tough times is not a grave sin. It’s honest, it’s real, and it’s admitting something vulnerable and scary is occurring that you cannot figure out how to face on your own. Why do we diminish that?!

I was raised to believe that as long as I do my best, it is always “good enough”, because it shows effort. And then I moved to another state where I know very few people, where “my best” is NEVER “good enough” because some unattainable level of perfection is expected at all times. It makes me feel like a bad Stepford Wife. 😦 I would not know what happiness was if a radioactive spider bit my ass. I haven’t known happiness in so long, it scares me. I feel emotions, yes, but happiness is almost never among them. How’s that for honest?

My brother has been through a torturous, evil kind of hell this year. I highly suspect that whatever was done to his heart set off a myriad of other health issues because I cannot recall a time when he wasn’t under the age of ten and on antibiotics as often as he’s been this year. He has been in and out of the hospital so many times that I’ve damn near had a multitude of nervous breakdowns every single time. I am currently waiting to hear back from a surgeon as he embarks on surgery number five in just slightly over a year; which is more surgery than he’s ever had in his entire life. It worries me on such a deep level, it’s difficult to convey.

I am immensely disheartened by how uncaring and unkind people are being towards him. At the beginning and end of each day, we only have so many family members in life, and as we’ve established, life is as short as it is long. My brother & I don’t have a lot of family, so we’ve had to rally around each other and be each other’s biggest support system through what has been, in essence, the gates of Hell. I may yell at him and get frustrated, I may say nasty things to him in the heat of the moment because he pushes my buttons, but ultimately, I’m not ignoring him or pretending he doesn’t exist in the hopes he’ll simply go away. I might not respond to a phone call or a text message when I’m sleeping, and sometimes I am guilty of ignoring him for a full twenty-four hours because I can’t handle the stress, but I do speak to my brother. I might not admit this to him, but he’s one of my best friends.

I say a painful goodbye to 2016, a year that has made me suffer in ways I can’t discuss; physically, mentally, and emotionally. I hope and pray that 2017 offers me more opportunities, better work, better pay, the same high-quality friendships I’ve maintained since day one (I’ve gotta say it; my friends are the BEST friends. They’re the first people to ask if I’m okay, to see through answers when I’m 100% NOT okay, and be as supportive as they can through crises. I would not have made it through parts of this year if it weren’t for the relationships in my life, both old and new, that have helped reinforce who I am as a person.), a real directional shift that leads me exactly where I need to be lead, and a year that allows me to achieve goals I have set for myself. The big goals, because at the moment, small goals aren’t cutting it.

I’d like to see some medical breakthroughs to help me better manage my pain and overall health. I was hit in the back with a shopping cart today at a local grocery store. This woman was on her cell phone and obviously thought she had enough room and/or didn’t even see me. I swear I am invisible to 99% of the “human race”. Initially my response was “Excuse YOU!”, but the lunatic just kept on walking, loudly debating stupidity on her phone. I did not feel it was worth pursuing in the moment, but now I am sorry I didn’t. I’m not sure if she did any real damage that wasn’t already there, but the level of pain I’m in is not something I want to take with me into the coming year, or any other year. I truly think CBD oil is in my future, as the “war on opiates” in this state is far too ridiculous to pursue with a doctor. I will, but I, like so many others, need a backup plan to help manage the pain in my life. No one should ever have to live like this.

Blessings to you all, as we say goodbye to 2016 and welcome in what will hopefully a bright New Year! 

copyright © 2016 by Lisa Marino & Blackbird Serenity LLC. ALL RIGHTS RESERVED.

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