Accepting My Disability and My New Limits


The Value of a Headache Specialist

I waited nearly six months to see my new neurologist, who is one of the top headache specialists on the East Coast. People drive from other states just to come and see her, and they do so out-of-pocket. For someone to say “I drive to Boston from Northern Maine four times a year to see her and she is worth every minute of those trips.” Not the first person to say they travel a long distance to remain under her care. Some people fly in just to see her! She shrugs it off, because to her, she’s just doing her job.

I liked her right away, which does not happen often for me. She’s tough, no-nonsense, and instead of playing the “Let’s try this.” game with me (which last year’s neurologist did, all while telling me my insurance wouldn’t pay for the treatment method he wanted to go with, when I said “They absolutely do. You just have to put in for prior authorization. Honestly, I’m glad he was a flake because his douche-baggery led me to a really gifted physician, and ultimately, the day I returned, I was put back on another path to health, so ultimately, he did me a favor.), she got straight to the point, declared the best possible treatment option for me, and assured me it should work. Why? Because she, too, suffers from migraines and undergoes the same treatment. Her assistant is an angel who took care of all of the legwork with my insurance company. The day I met her, she said it might be a few months because she knows she’s “very backed up”. For once in my life, the stars aligned; I got into my treatment plan in three weeks, all because someone cancelled and I called at the best possible moment to find out if my insurance company had come through. They did.

I actually saw the bill for this treatment today and was really surprised at how inexpensive it was, overall. When I consider all of the doctors I’ve seen for migraines, all the different medications I’ve been on (one of which costs $300 a month.), the MRIs and CT scans, and supplements I’ve taken from day one as a migraine patient, I am certain the total cost amounted out to one year attending an Ivy League school while living on campus. I wish this particular treatment option had been covered all along. I am grateful for the chance to A) Have a solid doctor on my side overseeing my care, and B) Having insurance that covered the full cost.

If anyone needs a headache specialist in Massachusetts, I am happy to refer you.

This Young Woman’s Migraines Turned Out to be a Brain Tumor

This happens to many people, and so many doctors will blow it off or refuse to order “new” tests if a previous one was clean. This person was covered because of where she lives, but in the U.S., we are fighting for proper treatment and arguing with insurance companies over many basic things.